Tuesday, July 8, 2008

Prayers for Landry


So this isn't exactly the news parents of newborns want, but it is what it is. David and I learned last night that Landry has a heart defect. It is called a Ventricular Septal Defect. Essentially there is a hole between her left and right ventricles. There are three degrees, mild, moderate and large. They believe that hers is mild to moderate. We are to see a cardiologist so that the defect can be followed. It is a rare defect that occurs in 1% of individuals. There was another hole in another area of her heart and some valve problems, but the neonatologist assured us that those were not even considered mild and to not focus on them. There is a 30 to 60% chance that the hole will close on its own. 30% for moderate holes and 60% for mild. So, maybe 50/50? The good news is it really should not effect her in any aspect of her life. Worst case scenario....she can't do sports (gasp, I know). So, that is the good news. Of course I took the news pretty hard, no one wants to be told their baby has a heart defect. There are no known causes. The pediatrician saw Landry this morning and told David that of all the heart defects to have, this is the one you would want. I guess that's reassuring in some way. Still it's a hard pill to swallow when your told the news and then the neonatologist is telling you the signs of congestive heart failure.

Landry was able to come home with us last night. She had an excellent first night at home!!!

Landon is under the lights for his bilirubin. He should be done with that by noon today. His temperature dropped yesterday though around 7:30 pm. The neonatologist said he will come out from the lights at noon. If he maintains his temp and has two 30 ml feeds in a row, he will release him since we have a drs. appt. tomorrow to follow up on his jaundice. We are hopeful to bring him home with us tonight if he is ready.

3 comments:

Sara said...

How scary for you! I am glad to hear that it is not serious, but I know that with our hormone filled bodies right now that it can be extra scary. I am believing with you that it will close up on its own and your little boy can get home soon. Thinking of you and your little ones. :-)

blueladybug

Liz said...

hoping Landry's heart closes and no future surgery is needed. congrats on being able to take her home! It's a great feeling and will be even better when Landon joins her.

CJ said...

Congrats Girlie!! Sorry to hear about the hole in the heart though. My nephew had it and it fixed itself and he runs all the time and is now almost 11 years old!! She'll be fine!! Glad that one came home and you'll get the other soon!

Congrats again!